I was recently diagnosed with a Long Q Rhythm. I'm wondering if there is anyone else out there with this problem.
My Dr. recommends Beta Blocker and no more racing. He also commented that I've had this condition all my life so I'll probably be ok.
I would like to PM with anyone out there who is swimming with a similar situation. I am feeling very conflicted and would like to talk to someone in the same boat.
I read the paragraph about the sisters who swam in Nationals with a Long Q diagnosis, in fact that article motivated me to go to the electrophysicist (sp) and get this checked out by a specialist.
Any further developments, Bobinator? This Dr. Chen and his staff sound like great people, especially when compared to the predecessor. My prediction continues to be this: your condition will prove to be much less worrisome than you have feared.
Hi Jim, I just saw this posting.
Right now I'm trying to figure out how to purchase 2 defibulators, one for Sarah and one for me. I may need to get one for Lindsay's baby when it arrives too. I'm trying to get the insurance company to pay for them since they're $1,200.00 or so apiece. I'll probably take Sarah and myself to Mayo Clinic whenever she gets a break from school, the guru of Long QT docs practices there. I've read that the more LQT patients a doc sees the less restrictive they usually are.
I haven't received genetic test results yet, probably a couple more weeks.
I'm still taking 12.5 mg. of the beta blocker and swimming normally. Sarah is living totally normal. I'm on a couple facebook groups and the SADS support group but when I think about this too much I get obsessive and crazy so I try not to visit the groups much. I think I'm going to do a scy meet or so. I'll probably just swim workout speed and have fun with the team. I want to do the 5K ow Nationals this summer, we are hosting them. I'm hoping for good news from the Dr. I may get Marty to kayak along side me in case I have a problem.
Any further developments, Bobinator? This Dr. Chen and his staff sound like great people, especially when compared to the predecessor. My prediction continues to be this: your condition will prove to be much less worrisome than you have feared.
Hi Jim, I just saw this posting.
Right now I'm trying to figure out how to purchase 2 defibulators, one for Sarah and one for me. I may need to get one for Lindsay's baby when it arrives too. I'm trying to get the insurance company to pay for them since they're $1,200.00 or so apiece. I'll probably take Sarah and myself to Mayo Clinic whenever she gets a break from school, the guru of Long QT docs practices there. I've read that the more LQT patients a doc sees the less restrictive they usually are.
I haven't received genetic test results yet, probably a couple more weeks.
I'm still taking 12.5 mg. of the beta blocker and swimming normally. Sarah is living totally normal. I'm on a couple facebook groups and the SADS support group but when I think about this too much I get obsessive and crazy so I try not to visit the groups much. I think I'm going to do a scy meet or so. I'll probably just swim workout speed and have fun with the team. I want to do the 5K ow Nationals this summer, we are hosting them. I'm hoping for good news from the Dr. I may get Marty to kayak along side me in case I have a problem.
