I was recently diagnosed with a Long Q Rhythm. I'm wondering if there is anyone else out there with this problem.
My Dr. recommends Beta Blocker and no more racing. He also commented that I've had this condition all my life so I'll probably be ok.
I would like to PM with anyone out there who is swimming with a similar situation. I am feeling very conflicted and would like to talk to someone in the same boat.
I read the paragraph about the sisters who swam in Nationals with a Long Q diagnosis, in fact that article motivated me to go to the electrophysicist (sp) and get this checked out by a specialist.
Hey Robin--
When I first started going through this, I actually contacted the woman who was filmed at short course Nationals talking about having been diagnosed with Long QT. She went to the Mayo Clinic where she was seen by Dr. Michael Ackerman (who is supposedly the leading Long QT researcher/doctor). That was where I was going to go if I was told I needed a defibrillator implant.
Do call and get your results. I had to finally call to get the doctor's office to take blood and send it in for the test. It was nice knowing that the genetic testing process was at least in motion. The waiting is difficult but worse when you don't know if anyone is doing anything productive.
I just came upon this article while googling Dr. Ackerman this morning. I haven't seen it before and am not even done reading it. But I'll link anyway.
www.physorg.com/news99834889.html
Take care and hang in there :)
Amy
Hey Robin--
When I first started going through this, I actually contacted the woman who was filmed at short course Nationals talking about having been diagnosed with Long QT. She went to the Mayo Clinic where she was seen by Dr. Michael Ackerman (who is supposedly the leading Long QT researcher/doctor). That was where I was going to go if I was told I needed a defibrillator implant.
Do call and get your results. I had to finally call to get the doctor's office to take blood and send it in for the test. It was nice knowing that the genetic testing process was at least in motion. The waiting is difficult but worse when you don't know if anyone is doing anything productive.
I just came upon this article while googling Dr. Ackerman this morning. I haven't seen it before and am not even done reading it. But I'll link anyway.
www.physorg.com/news99834889.html
Take care and hang in there :)
Amy
