I was recently diagnosed with a Long Q Rhythm. I'm wondering if there is anyone else out there with this problem.
My Dr. recommends Beta Blocker and no more racing. He also commented that I've had this condition all my life so I'll probably be ok.
I would like to PM with anyone out there who is swimming with a similar situation. I am feeling very conflicted and would like to talk to someone in the same boat.
I read the paragraph about the sisters who swam in Nationals with a Long Q diagnosis, in fact that article motivated me to go to the electrophysicist (sp) and get this checked out by a specialist.
I am not aware of any data to suggest that your level of conditioning affects your risk of sudden death in long QT syndrome. It is known that exercise can pose more of a risk in certain genetic subtypes than others.
I'm also interested in the genetic subtypes that are more prone to this than others. I had genetic testing done and mentioned it in my blog here. There's a couple of other things I see when looking at my genetic results, but I don't see a mention of Long QT at all (either positive or negative).
I have a history of sudden death in my family. But looking further back (getting the genetic results prompted me to do some ancestry research too), it wasn't as prevalent. According to the genetic results, I'm much more likely to have coronary heart disease.
If you know what I should look for in my raw DNA data, that would be handy.
I also plan to print out/bring some of this with me for my next routine doctor's visit.
I am not aware of any data to suggest that your level of conditioning affects your risk of sudden death in long QT syndrome. It is known that exercise can pose more of a risk in certain genetic subtypes than others.
I'm also interested in the genetic subtypes that are more prone to this than others. I had genetic testing done and mentioned it in my blog here. There's a couple of other things I see when looking at my genetic results, but I don't see a mention of Long QT at all (either positive or negative).
I have a history of sudden death in my family. But looking further back (getting the genetic results prompted me to do some ancestry research too), it wasn't as prevalent. According to the genetic results, I'm much more likely to have coronary heart disease.
If you know what I should look for in my raw DNA data, that would be handy.
I also plan to print out/bring some of this with me for my next routine doctor's visit.
