I was recently diagnosed with a Long Q Rhythm. I'm wondering if there is anyone else out there with this problem.
My Dr. recommends Beta Blocker and no more racing. He also commented that I've had this condition all my life so I'll probably be ok.
I would like to PM with anyone out there who is swimming with a similar situation. I am feeling very conflicted and would like to talk to someone in the same boat.
I read the paragraph about the sisters who swam in Nationals with a Long Q diagnosis, in fact that article motivated me to go to the electrophysicist (sp) and get this checked out by a specialist.
Thanks again Amy!
When I'm swimming I feel great and confident that I'm fine. During the time inbetween I start folding like a cheap suit.
It just amazes me that 20 years ago I could run a sub-3 hour marathon, did all these crazy triathlons pretty well, and all the time had a bad ticker. I'm either extremely lucky or mis-diagnosed. And wouldn;t you think the act of childbirth would cause cardiac arrest in a weak person. I had 3 kids over 9 lbs without pain drugs or anything. I would have thought that might have killed me. I don't know :( I'm going to go do some easy swimming again and hope I get the news about the genetic testing tomorrow.
Hey Amy, did they ever do an exercise stress test on you? The folk from SADS said it would be a good thing to do. They also said they should have done more than 1 ekg. Just wondering.
Hugs to you too!
robin
Yes, my cardiologist had me do a stress test and he thought I was fine based on the fact that my QT interval shortens up great during exercise. The long QT intervals that were noticed on me were during rest.
And your questions are valid, IMO. I've also had three successful pregnancies. Women with LQTS are supposedly at greater risk during pregnancy. So, we both have no history, no family history and levels of activity and successful pregnancies way above the norm. I'm not sure you should be feeling like a defective creature at this point. Wait until you get your results back. Get a stress test. My motto for myself was to wait to panic until I KNEW I had something to panic about. (That doesn't mean I don't understand exactly how you feel). You will go back and forth from extreme stress to anger to denial to feeling ok. Hang in there.
Thanks again Amy!
When I'm swimming I feel great and confident that I'm fine. During the time inbetween I start folding like a cheap suit.
It just amazes me that 20 years ago I could run a sub-3 hour marathon, did all these crazy triathlons pretty well, and all the time had a bad ticker. I'm either extremely lucky or mis-diagnosed. And wouldn;t you think the act of childbirth would cause cardiac arrest in a weak person. I had 3 kids over 9 lbs without pain drugs or anything. I would have thought that might have killed me. I don't know :( I'm going to go do some easy swimming again and hope I get the news about the genetic testing tomorrow.
Hey Amy, did they ever do an exercise stress test on you? The folk from SADS said it would be a good thing to do. They also said they should have done more than 1 ekg. Just wondering.
Hugs to you too!
robin
Yes, my cardiologist had me do a stress test and he thought I was fine based on the fact that my QT interval shortens up great during exercise. The long QT intervals that were noticed on me were during rest.
And your questions are valid, IMO. I've also had three successful pregnancies. Women with LQTS are supposedly at greater risk during pregnancy. So, we both have no history, no family history and levels of activity and successful pregnancies way above the norm. I'm not sure you should be feeling like a defective creature at this point. Wait until you get your results back. Get a stress test. My motto for myself was to wait to panic until I KNEW I had something to panic about. (That doesn't mean I don't understand exactly how you feel). You will go back and forth from extreme stress to anger to denial to feeling ok. Hang in there.
