I was recently diagnosed with a Long Q Rhythm. I'm wondering if there is anyone else out there with this problem.
My Dr. recommends Beta Blocker and no more racing. He also commented that I've had this condition all my life so I'll probably be ok.
I would like to PM with anyone out there who is swimming with a similar situation. I am feeling very conflicted and would like to talk to someone in the same boat.
I read the paragraph about the sisters who swam in Nationals with a Long Q diagnosis, in fact that article motivated me to go to the electrophysicist (sp) and get this checked out by a specialist.
Second opinions should always be encouraged. But finding an answer that is more acceptable to you than the one given by your electrophysiologist does not necessarily mean that it is more valid. And you should not assume that it is simply the threat of litigation that is responsible for his recommendation against strenuous exercise. The reality is that the risk of sudden death in long QT syndrome is real but impossible to quantitate precisely for any one individual. Even low risk does not mean zero risk.
Knowing what you know about this condition what would you do if this happened to you? I'm not sure this is a fair question but again I have nothing to compare the risk to. Is it safer than swimming in the ocean with sharks? Driving on the freeway in lots of traffic seems to be risky but we all do it. I wish I had some tangible activity I could compare the risk against. I am probably thinking too much.
Second opinions should always be encouraged. But finding an answer that is more acceptable to you than the one given by your electrophysiologist does not necessarily mean that it is more valid. And you should not assume that it is simply the threat of litigation that is responsible for his recommendation against strenuous exercise. The reality is that the risk of sudden death in long QT syndrome is real but impossible to quantitate precisely for any one individual. Even low risk does not mean zero risk.
Knowing what you know about this condition what would you do if this happened to you? I'm not sure this is a fair question but again I have nothing to compare the risk to. Is it safer than swimming in the ocean with sharks? Driving on the freeway in lots of traffic seems to be risky but we all do it. I wish I had some tangible activity I could compare the risk against. I am probably thinking too much.
