I was recently diagnosed with a Long Q Rhythm. I'm wondering if there is anyone else out there with this problem.
My Dr. recommends Beta Blocker and no more racing. He also commented that I've had this condition all my life so I'll probably be ok.
I would like to PM with anyone out there who is swimming with a similar situation. I am feeling very conflicted and would like to talk to someone in the same boat.
I read the paragraph about the sisters who swam in Nationals with a Long Q diagnosis, in fact that article motivated me to go to the electrophysicist (sp) and get this checked out by a specialist.
Parents
Former Member
Second opinions should always be encouraged. But finding an answer that is more acceptable to you than the one given by your electrophysiologist does not necessarily mean that it is more valid. And you should not assume that it is simply the threat of litigation that is responsible for his recommendation against strenuous exercise. The reality is that the risk of sudden death in long QT syndrome is real but impossible to quantitate precisely for any one individual. Even low risk does not mean zero risk.
Second opinions should always be encouraged. But finding an answer that is more acceptable to you than the one given by your electrophysiologist does not necessarily mean that it is more valid. And you should not assume that it is simply the threat of litigation that is responsible for his recommendation against strenuous exercise. The reality is that the risk of sudden death in long QT syndrome is real but impossible to quantitate precisely for any one individual. Even low risk does not mean zero risk.
